Brain Tumor Reference Page


The following links were compiled while researching brain tumors and treatments after my Mom was diagnosed with an Oligodendroglioma (grade III) in September 1999. I have compiled them here in hopes that it may save someone else some time researching information for brain tumors.

I have tried to link to the original documents and/or web pages, but sometimes that information was lost. If you find the original source for a link below, please send it to me.

Pleaes feel free to email me with any questions.

Kevin Dooley
kevin @ dooley.org

Helpful Articles:

  • Arthur's list of tips for the newly diagnosed!
  • Questions to Ask Your Healthcare Team (Word doc)
  • A ,B, Cs of Brain Tumors -- From Their Biology to Their Treatments
  • Searching for Consensus
  • Rules of Engagement (Excerpt from the book Fighting Cancer, Chapter 12)
  • Brain Hospice

  • Treatment Information:
  • "Current Treatment of Oligodendrogliomas" published in the JAMA Neurological Review April 1999
  • Wada Test (Simple)
  • Wada Test (Detailed)
  • Wada Test (Email)
  • Wada Test (extensive doc)
  • An excellent discussion of PCV
  • Basic info on Tahlidomide from NYU
  • Fractionated Streotactic Radiosurgery
  • Stereotactic Radiosurgery For Primary Brain Tumors
  • Fractionated Stereotactic Radiosurgery For Primary Brain Tumors
  • 3-Dimensional irradiation planning in brain tumors

  • Reference Sites:
  • Clinical Trials and Noteworthy Treatments for Brain Tumors
  • American Brain Tumor Association (1-800-886-2282)
  • National Brain Tumor Foundation
  • Brain Tumor Coalition (other organizations)
  • Cancer Information Service
  • National Cancer Institute - Comprehensive Cancer Centers
  • Chicago Institute for Neurosurgery & Neuroresearch
  • Mass General - Brain Tumors
  • Oncolink
  • University of Texas MD Anderson Cancer Center's Treatment Research
  • Brain Surgery Information Center
  • Brain Injury Association (800-444-6443)
  • National Institue of Neurological Disorders and Stroke (800-352-9424)
  • Clinical trial web site of the National Cancer Institute
  • Resume of Dr. Keith Rich
  • The Healing Exchange Brain Trust T.H.E.BRAIN TRUST (includes the BRAINTMR list)
  • Jim Kenzig's Site: Brain Tumor Links and Information
  • Memorial-Sloan-Kettering Hospital
  • Dan Colilla'S Brain Tumor Information Web Site
  • M.D.Anderson Cancer Center - M.D.Anderson Information Line 1-800-392-1611 (Option 3 For information about M.D.Anderson)
  • Anderson Network 1-800-345-6324 (To talk with another patient with the same diagnosis)
  • Cancer Information Service 1-800-4-CANCER For up-to-date cancer information--literature and/or counseling